April is HIE Awareness Month, and this year the @hopeforhie community’s theme is: Hold Onto Hope.
Today, we honor the incredible children and families whose lives have been impacted by HIE by featuring some of these incredibly brave little ones from the very beginning of their stories to where they are today.
You will see strength. Resilience. Joy. Courage. You will see children who continue to defy expectations in their own beautiful ways, and families who have walked beside them through every challenge, milestone, setback, and victory.
To every parent, sibling, grandparent, family member, and support system: we see you too. We honor your strength, your advocacy, your love, and the way you continue to show up for your child and family, even on the difficult days.
If your child has been diagnosed with HIE and you have not yet connected with Hope for HIE, we encourage you to do so. Their community and resources are truly incredible, and no family should have to walk this journey alone.
Please join us in celebrating these amazing children and the stories behind these photos. Share a heart, a word of encouragement, or simply help us remind these families that they are not alone.
If you would like to share your child’s story, please send us a DM. We would be honored to celebrate and honor them too.
#nicujourney #holdontohope #hopeforhie #hieawareness #nicuparents