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Umbilical Catheters… What are they? Did you even know that …

Nicole Nyberg

Empowering NICU Parents
-NICU Mom & NNP
-Podcast Host, Public Speaker
-Educate & Empower NICU parents & clinicians empoweringnicuparents@yahoo.com

Twelve years ago today, we carried our son out of the NICU after 91 long days.

If you’re in the NICU today, I know how impossible the days can feel. Time moves differently there. Every hour feels heavy, every milestone feels hard-earned, and home can seem so very far away.

But one day, you’ll look back and realize those endless days became part of a much bigger story.

Not because the NICU disappears—it doesn’t. It becomes part of who you are. But life grows around it. Joy returns. New memories are made. Birthdays are celebrated. First days of school, swim meets, family vacations, ordinary Tuesday nights… they begin to outnumber the NICU days.

Today, our tiny 23-week baby is 12 years old. Watching him grow has reminded me that while the NICU may shape your story, it does not have to define the rest of it.

So if you’re still counting episodes, grams, or days until discharge, keep holding on.

Hope isn’t pretending today isn’t hard.
Hope is believing tomorrow can be different.

We’re believing that with you. 🤍

#EmpoweringNICUParents #nicugrad #NICUParents #NICUStrong #micropreemie

There are some podcast episodes I’m proud of.

Then there are the ones I wish every single NICU parent could hear.

This is one of them.

I don’t say that because it’s about feeding.

I say it because it’s about what happens when someone finally teaches parents to understand their baby.

Not guess. Not wonder. Actually understand them.

Former NICU mom Liz Barker shares how one nurse introduced her to a completely different way of understanding her daughter—and how an entire NICU team’s consistent approach changed her experience forever.

That education changed everything.

It gave her confidence.

It transformed her breastfeeding journey.

And years later...she still remembers exactly how it made her feel.

As I listened to Liz’s story, I couldn’t help but think, every NICU parent deserves to feel this empowered.

If you’ve ever wondered what true family-centered care looks like—or what’s possible when we intentionally educate and partner with parents from day one—this conversation is for you.

Joined by Lisa Kleinz, MA, SLP/L, CNT, Director of Education at Dr. Brown’s Medical, we explore the evidence behind the Infant-Driven Feeding® (IDF®) Program and why it’s transforming not only feeding outcomes, but the confidence, connection, and lifelong relationships between babies and their families.

🎧 I truly hope you’ll listen. Link in profile.

#NICUParent #InfantDrivenFeeding #DevelopmentalCare #FamilyCenteredCare #Breastfeeding

Happy 4th of July!!! 🎆

Thank you to the care team members who are working over the holiday weekend.

To all the NICU and pediatric families who are spending their holiday in the hospital…we are thinking of you. ❤️🤍💙

#4thofjuly🇺🇸🇺🇸 #america250 #independenceday #nicuparents #nicunurse

What does it take to create meaningful, lasting change in the NICU?

The answer isn’t just more research. It’s turning research into action.

In this episode of the Empowering NICU Parents Podcast, I’m honored to welcome my friend and colleague, Fabiana Bacchini, Executive Director of the Canadian Premature Babies Foundation and one of the world’s leading voices in family partnership and family-centered neonatal care.

Together, we share the story behind the Presence Study Toolkit—how the groundbreaking Presence Study evolved into a practical implementation guide that helps NICUs translate research into meaningful, sustainable practice change.

It was an incredible privilege to serve alongside Fabiana as one of the lead authors of this toolkit, working with an extraordinary team of clinicians, researchers, parent advocates, and healthcare leaders who shared one vision: helping NICUs move from evidence to action.

One of the most important messages from this episode is simple:
Parents are not visitors. They are essential caregivers.

And meaningful change doesn’t happen all at once.

Start with one chapter. One recommendation. One small change.

Because small changes, rooted in purpose and guided by the why, have the power to transform the NICU experience for generations of babies and families.

🎧 Listen to the episode and download the FREE Presence Study Toolkit from the Family-Centered Care Task Force website (link in my bio/comments).

Thank you to AngelEye Health for sponsoring the development of the toolkit and for their ongoing commitment to family-centered care and to ensuring NICU families are informed, involved, and supported.

Together, we can create a better NICU experience for every babyand every family.

#nicubaby #nicunurse #nicuparents #nicumom #familycentered

Calling all current and former NICU parents!

Your experience can help improve how educational information is shared with NICU families.

We’re looking to better understand how much information is most helpful, when parents prefer to receive it, and how to make education more personalized without becoming overwhelming.

The survey takes just 3 minutes to complete, and as a thank you, you’ll have the chance to win one of four $25 Amazon gift cards!

Please take a moment to complete the survey and help improve the experience for future NICU families.

Scan the QR code to take the Survey!

Thank you for helping us make a difference, one family at a time.

#nicubaby #nicuparent #nicujourney #nicumom #nicugrad

To the dads who stood beside a NICU bed, held onto hope, and loved fiercely through every challenge—

Happy Father’s Day.

Your strength, presence, and unwavering love have made a lasting difference in your child’s story. 💙

#fathersday #fatherslove #nicudad #nicuparents #nicujourney

The Presence Study Toolkit is now available as a FREE resource on the Family-Centered Care Task Force website. 🤍

As a primary author and Co-Advocacy Chair for the Family-Centered Care Taskforce, I am incredibly honored to have helped bring this meaningful project to life alongside such an inspiring group of contributors.

Created through an extraordinary collaboration of 23 expert authors, this toolkit was designed to help NICU leaders, care teams, and families adopt a more family-centered approach to care grounded in 13 evidence-based recommendations from the Presence Study.

Proudly sponsored by AngelEye Health, this work reflects a shared commitment to supporting families, strengthening parental presence, and advancing family-centered NICU care.

What makes this toolkit especially meaningful is that every chapter was intentionally co-developed by both family and healthcare partners.

Family advocates, clinicians, researchers, healthcare leaders, and parents came together to ensure the content reflects not only clinical realities, but also the lived experiences of families navigating the NICU journey.

Because parental presence is not extra care.

Presence is care.

This toolkit is more than a resource. It is a call to continue building NICU environments where families are informed, supported, included, and empowered as essential members of the care team.

I am deeply grateful to every author, contributor, family partner, and leader who helped make this possible. I truly believe this work has the power to create meaningful change for NICU families and clinicians across the world.

Download the FREE Presence Study Toolkit on the FCC Taskforce website and help foster parental presence as an essential part of everyday NICU care. 🤍#nicuparents #familycenteredcare #nicunurse #nicubaby #nicucare

I’m incredibly proud of the launch of the Presence Study Toolkit by the Family-Centered Care Taskforce. 💙

As the FCC Taskforce Co-Chair of Advocacy, it was truly an honor to serve as one of the primary authors of this resource and to see it come to fruition after months of collaboration and dedication from an incredible team of clinicians, researchers, and parent partners.

This work is especially meaningful to me because it helps translate evidence into action—providing practical, evidence-based strategies to support parental presence, engagement, and true partnership in the NICU.

At its heart is a message I deeply believe in: parents are not visitors, they are essential caregivers.

The toolkit translates the evidence-based recommendations from the Presence Study into practical strategies that NICUs can use to strengthen family-centered care and parental engagement.

Whether you’re a NICU clinician, leader, advocate, or parent, this free resource is packed with valuable insights and actionable tools.

If you haven’t downloaded it yet, I encourage you to take a look and share it with others who are passionate about improving the NICU experience for babies and families.#nicuparents #nicubaby #nicunurse #empoweringnicuparents #nicumom

Stillness is strength. 💚

In the NICU, some of the most powerful moments happen in the quiet.

A parent holding their baby skin-to-skin.

Tiny fingers wrapped around a parent’s finger.

Hearts regulating together.

Slow, quiet breaths.

Safety being felt.

That is the power of kangaroo care.

These are not small moments.
They are monumental moments that help shape the foundation of an infant’s future — supporting bonding, brain development, regulation, healing, and connection.

Today on International Kangaroo Care Awareness Day, we celebrate the beauty and importance of skin-to-skin care for babies and families everywhere.

Join the movement: Share your skin-to-skin photo. Promote kangaroo care. 💚
Advocate for parental presence and connection in the NICU — today and every day.

#kangaroocare #nicuparents #nicunurse #nicubaby #nicumom

More Than Feeding: How the Infant-Driven Feeding® Program Empowers NICU Parents

The Presence Study Toolkit: Helping NICUs Translate Evidence into Practice

Beyond the NICU: How Small Moments Shape a Developing Brain

Umbilical Catheters in the NICU

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Nicole Nyberg

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