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Empowering NICU Parents

Empowering NICU Parents

Our Goal is to Support, Educate, and Empower NICU Parents

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23 weeker, premature infant, William Nyberg
Neurodevelopment in Premature Infants Podcast Premature Infants

Navigating Life After the NICU: The Lasting Effects of Prematurity

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Stronger Together: Nicole Nyberg on NICU Challenges and Family

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Cooper’s Legacy: Supporting NICU Families Through the Cooper Steinhauser Foundation

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Keeping an Eye on Your Angel in the NICU

by empoweringnicuparents

Introduction As a NICU parent, one of the most difficult …

NICU Knowledge Podcast

A Review of Venous and Arterial Lines Commonly Used in the NICU

by empoweringnicuparents

Introduction There are many terms and acronyms commonly used in …

RSV, syncytial, virus, Synagis, congestion, breathing, work of breathing
Podcast

RSV in Infants and Children: Symptoms, Prevention, and Synagis Criteria

by empoweringnicuparents

Introduction It is likely that you’ve heard about a child …

Podcast

The Wolff Family’s Post NICU Journey Through Home Trach Care, Decannulation, and Unexpected Surprises Too

by empoweringnicuparents

Introduction For our most recent podcast episode, I sat down …

NICU Knowledge Podcast Premature Infants

The Wolff Family’s Journey Through Loss, A Prolonged NICU Stay and What They Have Learned Along the Way

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Introduction For our most recent podcast episode, I sat down …

NICU Knowledge Podcast Premature Infants

Bronchopulmonary Dysplasia in Infants: A Review of Predisposing Factors, Preventative Measures, and Treatments

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Introduction     As we have discussed in a few …

Podcast Premature Infants

Skin Care: Clinical Guidelines for the NICU

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Introduction   Infants in the NICU are patients that require …

kangaroo care, skin-to-skin care, benefits, baby, parents
Free Resources Neurodevelopment in Premature Infants NICU Knowledge

Benefits of Kangaroo Care for the infant and the parents

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Did you know that the majority of the benefits of …

NICU Knowledge Podcast

Why are Term and Preterm Infants at an Increased Risk for Skin Injury?

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Introduction Although we may not always think of it, our …

NICU Knowledge Podcast

Elevated Bilirubin Levels in Infants: Screening and Management

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Introduction For our 32nd podcast episode, we reviewed hyperbilirubinemia and …

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About Our Site

Welcome! I am a Neonatal Nurse Practitioner and a Proud Preemie Mama! I am here to help parents navigate through their NICU journey with my combined NICU medical background and personal experience. Please read the posts, listen to our podcast, and check out our unique NICU-related products specifically geared to help you and your baby through this difficult process. Thank you!

Empowering NICU Parents Podcast

Empowering NICU Parents Podcast
Empowering NICU Parents Podcast

A podcast specifically meant to educate and empower NICU parents as they endure their baby’s NICU journey. We provide you with tangible tips and support from my unique perspective as a Neonatal Nurse Practitioner (NNP) and a proud preemie Mama! Along with sharing answers to the NICU medical questions you have, Nicole will address and support you through the incredibly difficult emotional struggles that only a NICU parent can understand. Tune in and subscribe today!

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Marijuana Use During Pregnancy and While Breastfeeding: Is It Really A Big Deal?

To start 2024 out, our first episode focuses on marijuana use, its impact on pregnancy, the growing fetus and the child’s future development, as well as the implications of its use during breastfeeding.

Who would have thought that in 2024, we would be living in a time where marijuana use is so prominent and that it would be legal in 24 states as of January of 2024?!?

But, nonetheless, here we are! Because marijuana has been legalized in so many states, there are now false evolving perceptions on its general safety as well as its implications on the developing fetus and infant who are exposed to it either in utero or through breastmilk. In general, the perception of harm from marijuana is decreasing while the potency of marijuana is scarily increasing. Marijuana is the most widely used illegal drug during pregnancy in the United States. And, its use in gaining speed amongst all adult age groups, in both sexes, and in pregnant women.

For our 56th episode, I reviewed the most up-to-date literature and will share the findings from several studies that reveal both short and long-term negative effects on the pregnant mother and developing fetus if used during pregnancy, and its future implications on the growing infant, child, and their transition into the teenage years, and as an adult after prenatal exposure. I will also point out the general concentration of marijuana in breast milk if used by a nursing mother, as well as how long it stays in the breast milk, and how it may impact the exposed infant.

This episode is packed full of useful information and will be ideal for any healthcare worker or for family members and friends who care about a pregnant woman or nursing mother who is currently using marijuana and want to ensure that she is fully educated on the implications of its use on her growing fetus or infant. And last, but actually, the most important, I encourage ALL women who are either considering becoming pregnant or who are currently pregnant and use marijuana on a regular basis, to listen.

Although marijuana use is so prevelant, it is so crucial that we fully understand its potential impact on the fetus and the child’s future development if used during pregnancy and while breastfeeding.
You will not want to miss this one!

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Marijuana Use During Pregnancy and While Breastfeeding: Is It Really A Big Deal?
Marijuana Use During Pregnancy and While Breastfeeding: Is It Really A Big Deal?
January 19, 2024
The BIG and Positive Impacts of Skin-to-skin Care in the NICU
November 24, 2023
Finding the Beauty in Life After the Loss of a Child
October 31, 2023
Supportive Organizations and Resources for Bereaved and NICU Families
October 25, 2023
Embracing Parental Advocacy and Empowerment in the NICU
September 25, 2023
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💜 Did you know that infants born premature may 💜 Did you know that infants born premature may face health challenges that extend beyond the NICU? This episode of the Empowering NICU Parents Podcast is one of the most emotionally impactful I’ve ever created—but it’s also one of the most important. We explore the lasting effects of prematurity on babies, parents, and families, focusing on the importance of awareness, advocacy, and proactive care. From health challenges to emotional resilience, this is a must-listen for anyone touched by the NICU journey. While this episode is filled with valuable insights, I want to acknowledge that it may also be difficult for NICU parents to listen to. Please know it is shared with the utmost care and compassion to empower and support you. 🎧 Why listen?
✔️ Understand the long-term impacts of prematurity
✔️ Learn how to advocate for your child’s care
✔️ Raise awareness for NICU families Together, we can raise awareness, inspire others, and support families navigating life beyond the NICU. ✨ Tag a NICU parent, healthcare provider, or supporter. Let’s empower each other and make a difference. 💪💜 #PrematurityAwareness #NICUJourney #EmpoweringNICUParents #PreemieStrong #LifeBeyondTheNICU #NICUParentSupport #PrematureBaby #NICUWarrior #PreemieLove #preemiemom #nicunurse #nnp #micropreemie #micropreemiemom #nicuparents #nicugraduate #nicuawareness
Prematurity Awareness Month is a time to honor the Prematurity Awareness Month is a time to honor the resilience of premature infants, celebrate the strength of their families, and raise awareness of the lasting impacts of preterm birth. For NICU families, take it one day at a time, show yourself grace, and know you’re not alone—during or after the NICU. Advocate for your little one every step of the way. To NICU clinicians, the care you give and how you give it truly matters—never underestimate your impact. Together, we can make a difference. #prematurityawarenessmonth #prematurityawareness #preemiestrong #preemiebaby #preemiemom #preemieparents #nicuparents #nicunurse
Prematurity Awareness Month The NICU journey with Prematurity Awareness Month The NICU journey with a premature infant is long, scary, unforgettable, and some days, it feels never ending. Not only does the trauma from the NICU last for years, but for some children, the lingering complications from a preterm birth remain at the forefront throughout their lifetime. Although the co-morbidities may not be apparent to the naked eye, their affect on the child and family are very impactful. This month is a time to honor all premature infants, celebrate the strength of their families, and to also bring awareness to others that the physical and mental impacts of a premature delivery remain with the infant and family for years and years. For NICU families, remember to take it one day at a time, and know that you are not alone in the process - whether it’s while you’re in the NICU, or post discharge. Show yourself some grace and always advocate for your little one. For NICU clinicians, know that the care you provide and the manner in which you provide it truly matters - do not ever underestimate it or your value. Together, we can make a powerful impact. #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemie #micropreemiemom #micropreemiesrock #prematuritymatters #preemiebaby #preemieawareness #preemielife
Good morning! Grateful for a beautiful day! Good morning! Grateful for a beautiful day!
Today, on World Prematurity Day, we recognize the Today, on World Prematurity Day, we recognize the resilience of preterm infants and their families and bring awareness to the challenges they face—not just in the NICU but for years to come. Each year, 1 in 10 babies worldwide are born too soon. Let’s stand together in support and hope for every baby born too soon. 💜 #WorldPrematurityDay #SupportPreemies #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemiemama #micropreemie #micropreemiemom #preemieparents #preemiebaby
Meet Thursday’s 30 weeker! Forrest was born on Meet Thursday’s 30 weeker! Forrest was born on May 8th, 2023 at 30 weeks’ gestation. He weighed 2lbs. 2oz He had quite the battle and fought like a true hero. He was born with an imperforate anus and hypospadias. On his second day of life, he underwent a crucial surgery to address the imperforate anus, which led to a colostomy of the larger intestine. Despite the early hardships, Forrest showed remarkable resilience and progress, bringing hope to everyone around him. He became very ill when he was a month and a half old. He underwent an emergent exploratory laparotomy on July 20th. Unfortunately, they discovered a malrotation of his small intestines. In a courageous display of strength, Forrest survived the intricate surgery, but not without a toll. The medical team had to remove 44cm of his small intestine, leaving him with a temporary jejunostomy.  Unfortunately, during his reanastomosis, they found 15cm of his small intestine that was necrotic. The surgeons removed it which only left him with 30cm of small intestines total. Forrest had a G-tube and broviac central line placed to get nutrients from TPN and lipids. He has “short gut syndrome” and works everyday to build up his tolerance of food.   So far he has had six major surgeries and he faces another four daunting operations to create an anus and revise the hypospadias. Forrest has had a long and arduous journey. His Mama @mcanelo1028 said that they are so thankful to have him as their some and to have him home. They are in utter awe of his strength and determination to live. He is the most joyful little boy who lights up every room he is in.  His Mama said that she hopes his story inspires other NICU parents. “The days are long but there is light at the end of the tunnel and you are never alone. I pray for all the families and babies that are in the NICU and hope they all get better and get to come home soon.” - Madison Canelo #nicuparents #nicubaby #nicugrad #shortgut #hypospadias #nicustrong #preemiestrong #preemiepower #preemieparents #preemiepride #30weeker #prematurityawarenessmonth #preemiebaby
Instagram post 18041897378323338 Instagram post 18041897378323338
As a NICU parent and advocate for families, I’m As a NICU parent and advocate for families, I’m continually inspired by the powerful stories shared by NICU families 💜 This #PrematurityAwarenessMonth, I invite you to share your NICU story to spread hope to others. 💫 If AngelEye’s solutions—like their Camera System, staff messaging, education support, or MilkTracker—have been part of your NICU journey, please leave a comment. Your words can make a meaningful difference. ✨ Three selected stories will receive a $100 grant for the NICU of your choice to support family-centered care To participate, follow @AngelEye_Health and share your story in the comments by November 30. Winners will be announced on December 5. I’m grateful to be part of this journey with you. Together, let’s build a stronger, supportive community. 💙 #AngelEyeHealth #ShareYourStory #PrematurityAwareness #PreemieParents #NICUParents #nicubaby #nicuparents #nicugraduate #niculife #nicucams #nicunurse #preemiestrong #preemiepower #preemieparents #preemiemom
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Published in neonatal INTENSIVE CARE: The Journal of Perinatology and Neonatology Winter 2023

NICU, neonatal intensive care, nicu parent, nicu nurse, connectedness, parent-child attachment

Published in neonatal INTENSIVE CARE: The Journal of Perinatology and Neonatology Summer 2023

NNP, NICU nurse, NICU parent, publish, journal, breastfeeding, breast milk

On the Other Side: A Neonatal Nurse Practitioner’s Perspective on being the mother of a 23-weeker

https://youtu.be/i8b6JOAlmsY

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💜 Did you know that infants born premature may 💜 Did you know that infants born premature may face health challenges that extend beyond the NICU? This episode of the Empowering NICU Parents Podcast is one of the most emotionally impactful I’ve ever created—but it’s also one of the most important. We explore the lasting effects of prematurity on babies, parents, and families, focusing on the importance of awareness, advocacy, and proactive care. From health challenges to emotional resilience, this is a must-listen for anyone touched by the NICU journey. While this episode is filled with valuable insights, I want to acknowledge that it may also be difficult for NICU parents to listen to. Please know it is shared with the utmost care and compassion to empower and support you. 🎧 Why listen?
✔️ Understand the long-term impacts of prematurity
✔️ Learn how to advocate for your child’s care
✔️ Raise awareness for NICU families Together, we can raise awareness, inspire others, and support families navigating life beyond the NICU. ✨ Tag a NICU parent, healthcare provider, or supporter. Let’s empower each other and make a difference. 💪💜 #PrematurityAwareness #NICUJourney #EmpoweringNICUParents #PreemieStrong #LifeBeyondTheNICU #NICUParentSupport #PrematureBaby #NICUWarrior #PreemieLove #preemiemom #nicunurse #nnp #micropreemie #micropreemiemom #nicuparents #nicugraduate #nicuawareness
Prematurity Awareness Month is a time to honor the Prematurity Awareness Month is a time to honor the resilience of premature infants, celebrate the strength of their families, and raise awareness of the lasting impacts of preterm birth. For NICU families, take it one day at a time, show yourself grace, and know you’re not alone—during or after the NICU. Advocate for your little one every step of the way. To NICU clinicians, the care you give and how you give it truly matters—never underestimate your impact. Together, we can make a difference. #prematurityawarenessmonth #prematurityawareness #preemiestrong #preemiebaby #preemiemom #preemieparents #nicuparents #nicunurse
Prematurity Awareness Month The NICU journey with Prematurity Awareness Month The NICU journey with a premature infant is long, scary, unforgettable, and some days, it feels never ending. Not only does the trauma from the NICU last for years, but for some children, the lingering complications from a preterm birth remain at the forefront throughout their lifetime. Although the co-morbidities may not be apparent to the naked eye, their affect on the child and family are very impactful. This month is a time to honor all premature infants, celebrate the strength of their families, and to also bring awareness to others that the physical and mental impacts of a premature delivery remain with the infant and family for years and years. For NICU families, remember to take it one day at a time, and know that you are not alone in the process - whether it’s while you’re in the NICU, or post discharge. Show yourself some grace and always advocate for your little one. For NICU clinicians, know that the care you provide and the manner in which you provide it truly matters - do not ever underestimate it or your value. Together, we can make a powerful impact. #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemie #micropreemiemom #micropreemiesrock #prematuritymatters #preemiebaby #preemieawareness #preemielife
Good morning! Grateful for a beautiful day! Good morning! Grateful for a beautiful day!
Today, on World Prematurity Day, we recognize the Today, on World Prematurity Day, we recognize the resilience of preterm infants and their families and bring awareness to the challenges they face—not just in the NICU but for years to come. Each year, 1 in 10 babies worldwide are born too soon. Let’s stand together in support and hope for every baby born too soon. 💜 #WorldPrematurityDay #SupportPreemies #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemiemama #micropreemie #micropreemiemom #preemieparents #preemiebaby
Meet Thursday’s 30 weeker! Forrest was born on Meet Thursday’s 30 weeker! Forrest was born on May 8th, 2023 at 30 weeks’ gestation. He weighed 2lbs. 2oz He had quite the battle and fought like a true hero. He was born with an imperforate anus and hypospadias. On his second day of life, he underwent a crucial surgery to address the imperforate anus, which led to a colostomy of the larger intestine. Despite the early hardships, Forrest showed remarkable resilience and progress, bringing hope to everyone around him. He became very ill when he was a month and a half old. He underwent an emergent exploratory laparotomy on July 20th. Unfortunately, they discovered a malrotation of his small intestines. In a courageous display of strength, Forrest survived the intricate surgery, but not without a toll. The medical team had to remove 44cm of his small intestine, leaving him with a temporary jejunostomy.  Unfortunately, during his reanastomosis, they found 15cm of his small intestine that was necrotic. The surgeons removed it which only left him with 30cm of small intestines total. Forrest had a G-tube and broviac central line placed to get nutrients from TPN and lipids. He has “short gut syndrome” and works everyday to build up his tolerance of food.   So far he has had six major surgeries and he faces another four daunting operations to create an anus and revise the hypospadias. Forrest has had a long and arduous journey. His Mama @mcanelo1028 said that they are so thankful to have him as their some and to have him home. They are in utter awe of his strength and determination to live. He is the most joyful little boy who lights up every room he is in.  His Mama said that she hopes his story inspires other NICU parents. “The days are long but there is light at the end of the tunnel and you are never alone. I pray for all the families and babies that are in the NICU and hope they all get better and get to come home soon.” - Madison Canelo #nicuparents #nicubaby #nicugrad #shortgut #hypospadias #nicustrong #preemiestrong #preemiepower #preemieparents #preemiepride #30weeker #prematurityawarenessmonth #preemiebaby
Instagram post 18041897378323338 Instagram post 18041897378323338
As a NICU parent and advocate for families, I’m As a NICU parent and advocate for families, I’m continually inspired by the powerful stories shared by NICU families 💜 This #PrematurityAwarenessMonth, I invite you to share your NICU story to spread hope to others. 💫 If AngelEye’s solutions—like their Camera System, staff messaging, education support, or MilkTracker—have been part of your NICU journey, please leave a comment. Your words can make a meaningful difference. ✨ Three selected stories will receive a $100 grant for the NICU of your choice to support family-centered care To participate, follow @AngelEye_Health and share your story in the comments by November 30. Winners will be announced on December 5. I’m grateful to be part of this journey with you. Together, let’s build a stronger, supportive community. 💙 #AngelEyeHealth #ShareYourStory #PrematurityAwareness #PreemieParents #NICUParents #nicubaby #nicuparents #nicugraduate #niculife #nicucams #nicunurse #preemiestrong #preemiepower #preemieparents #preemiemom
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