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Empowering NICU Parents

Empowering NICU Parents

Our Goal is to Support, Educate, and Empower NICU Parents

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23 weeker, premature infant, William Nyberg
Neurodevelopment in Premature Infants Podcast Premature Infants

Navigating Life After the NICU: The Lasting Effects of Prematurity

Mary Coughlin, Trauma-informed care, Care OutLoud Podcast
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Stronger Together: Nicole Nyberg on NICU Challenges and Family

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Cooper’s Legacy: Supporting NICU Families Through the Cooper Steinhauser Foundation

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Questions Parents Should Ask Their Baby’s NICU Care Team Each Day

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Introduction I am so thrilled to announce that Our NICU …

Podcast Premature Infants

NICU Trauma – How Well Are You Coping?

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Introduction Do you suffer from trauma from either your delivery …

NICU Knowledge Podcast

Advice for Current NICU Parents From Mothers of Multiples

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Introduction If you are a NICU parent and are in …

NICU Knowledge Podcast

Infant of Diabetic Mother: What are the potential complications and typical treatment plan?

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Introduction What does IDM stand for? In the medical world, …

Podcast

Gestational Diabetes: From diagnosis in pregnancy to blood sugar management and its effect on the health of the mother and infant

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Introduction In our 18th episode of the Empowering NICU Parents …

Neurodevelopment in Premature Infants Podcast

Optimizing Neurodevelopmental Outcomes in NICU Patients with Occupational Therapy – Part II

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Introduction If you are a current or former NICU parent, …

Neurodevelopment in Premature Infants NICU Knowledge NICU Products Podcast

Optimizing Neurodevelopmental Outcomes in NICU Patients with Occupational Therapy

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Podcast Episode 16 Introduction If you are a NICU parent, …

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Free Resources NICU Knowledge Premature Infants

Standing Transfer for Kangaroo Care

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Standing transfer for kangaroo care Kangaroo care has become one …

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Kangaroo Care in the NICU: How to address the barriers, assess for readiness, and transfer the infant safely

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Introduction In our 15th podcast episode, we continue our discussion …

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Kangaroo Care Log

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Kangaroo Care Log The time your infant spends in the …

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About Our Site

Welcome! I am a Neonatal Nurse Practitioner and a Proud Preemie Mama! I am here to help parents navigate through their NICU journey with my combined NICU medical background and personal experience. Please read the posts, listen to our podcast, and check out our unique NICU-related products specifically geared to help you and your baby through this difficult process. Thank you!

Empowering NICU Parents Podcast

Empowering NICU Parents Podcast
Empowering NICU Parents Podcast

A podcast specifically meant to educate and empower NICU parents as they endure their baby’s NICU journey. We provide you with tangible tips and support from my unique perspective as a Neonatal Nurse Practitioner (NNP) and a proud preemie Mama! Along with sharing answers to the NICU medical questions you have, Nicole will address and support you through the incredibly difficult emotional struggles that only a NICU parent can understand. Tune in and subscribe today!

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Navigating Life After the NICU: The Lasting Effects of Prematurity

In this heartfelt and eye-opening episode of the Empowering NICU Parents Podcast, host Nicole Nyberg dives deep into the profound and often unspoken challenges of prematurity. From the critical moments in the NICU to the lasting physical, emotional, and developmental impacts on children and their families, this episode sheds light on the full scope of the prematurity journey.

Discover how preterm birth affects every organ system, why the NICU environment plays such a pivotal role, and how parents can navigate the long-term outcomes with knowledge and confidence. Nicole also shares her personal experience as a mom of a micropreemie, offering insight, support, and a reminder that no family is alone in this journey.

Whether you’re a NICU parent, healthcare provider, or someone wanting to better understand preterm birth and its impact, this episode is packed with essential information, actionable advice, and heartfelt encouragement. Tune in, be inspired, and join the movement to raise awareness and empower families navigating life beyond the NICU!

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Navigating Life After the NICU: The Lasting Effects of Prematurity
Navigating Life After the NICU: The Lasting Effects of Prematurity
November 30, 2024
Stronger Together: Nicole Nyberg on NICU Challenges and Family
October 23, 2024
Cooper’s Legacy: Supporting NICU Families Through the Cooper Steinhauser Foundation
September 4, 2024
Cooper’s NICU Journey: Honoring a Courageous Life Bolstered by Parental Strength
July 25, 2024
Nurturing and Supporting Mental Health in NICU Parents
May 31, 2024
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empoweringnicuparents
💜 Did you know that infants born premature may 💜 Did you know that infants born premature may face health challenges that extend beyond the NICU? This episode of the Empowering NICU Parents Podcast is one of the most emotionally impactful I’ve ever created—but it’s also one of the most important. We explore the lasting effects of prematurity on babies, parents, and families, focusing on the importance of awareness, advocacy, and proactive care. From health challenges to emotional resilience, this is a must-listen for anyone touched by the NICU journey. While this episode is filled with valuable insights, I want to acknowledge that it may also be difficult for NICU parents to listen to. Please know it is shared with the utmost care and compassion to empower and support you. 🎧 Why listen?
✔️ Understand the long-term impacts of prematurity
✔️ Learn how to advocate for your child’s care
✔️ Raise awareness for NICU families Together, we can raise awareness, inspire others, and support families navigating life beyond the NICU. ✨ Tag a NICU parent, healthcare provider, or supporter. Let’s empower each other and make a difference. 💪💜 #PrematurityAwareness #NICUJourney #EmpoweringNICUParents #PreemieStrong #LifeBeyondTheNICU #NICUParentSupport #PrematureBaby #NICUWarrior #PreemieLove #preemiemom #nicunurse #nnp #micropreemie #micropreemiemom #nicuparents #nicugraduate #nicuawareness
Prematurity Awareness Month is a time to honor the Prematurity Awareness Month is a time to honor the resilience of premature infants, celebrate the strength of their families, and raise awareness of the lasting impacts of preterm birth. For NICU families, take it one day at a time, show yourself grace, and know you’re not alone—during or after the NICU. Advocate for your little one every step of the way. To NICU clinicians, the care you give and how you give it truly matters—never underestimate your impact. Together, we can make a difference. #prematurityawarenessmonth #prematurityawareness #preemiestrong #preemiebaby #preemiemom #preemieparents #nicuparents #nicunurse
Prematurity Awareness Month The NICU journey with Prematurity Awareness Month The NICU journey with a premature infant is long, scary, unforgettable, and some days, it feels never ending. Not only does the trauma from the NICU last for years, but for some children, the lingering complications from a preterm birth remain at the forefront throughout their lifetime. Although the co-morbidities may not be apparent to the naked eye, their affect on the child and family are very impactful. This month is a time to honor all premature infants, celebrate the strength of their families, and to also bring awareness to others that the physical and mental impacts of a premature delivery remain with the infant and family for years and years. For NICU families, remember to take it one day at a time, and know that you are not alone in the process - whether it’s while you’re in the NICU, or post discharge. Show yourself some grace and always advocate for your little one. For NICU clinicians, know that the care you provide and the manner in which you provide it truly matters - do not ever underestimate it or your value. Together, we can make a powerful impact. #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemie #micropreemiemom #micropreemiesrock #prematuritymatters #preemiebaby #preemieawareness #preemielife
Good morning! Grateful for a beautiful day! Good morning! Grateful for a beautiful day!
Today, on World Prematurity Day, we recognize the Today, on World Prematurity Day, we recognize the resilience of preterm infants and their families and bring awareness to the challenges they face—not just in the NICU but for years to come. Each year, 1 in 10 babies worldwide are born too soon. Let’s stand together in support and hope for every baby born too soon. 💜 #WorldPrematurityDay #SupportPreemies #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemiemama #micropreemie #micropreemiemom #preemieparents #preemiebaby
Meet Thursday’s 30 weeker! Forrest was born on Meet Thursday’s 30 weeker! Forrest was born on May 8th, 2023 at 30 weeks’ gestation. He weighed 2lbs. 2oz He had quite the battle and fought like a true hero. He was born with an imperforate anus and hypospadias. On his second day of life, he underwent a crucial surgery to address the imperforate anus, which led to a colostomy of the larger intestine. Despite the early hardships, Forrest showed remarkable resilience and progress, bringing hope to everyone around him. He became very ill when he was a month and a half old. He underwent an emergent exploratory laparotomy on July 20th. Unfortunately, they discovered a malrotation of his small intestines. In a courageous display of strength, Forrest survived the intricate surgery, but not without a toll. The medical team had to remove 44cm of his small intestine, leaving him with a temporary jejunostomy.  Unfortunately, during his reanastomosis, they found 15cm of his small intestine that was necrotic. The surgeons removed it which only left him with 30cm of small intestines total. Forrest had a G-tube and broviac central line placed to get nutrients from TPN and lipids. He has “short gut syndrome” and works everyday to build up his tolerance of food.   So far he has had six major surgeries and he faces another four daunting operations to create an anus and revise the hypospadias. Forrest has had a long and arduous journey. His Mama @mcanelo1028 said that they are so thankful to have him as their some and to have him home. They are in utter awe of his strength and determination to live. He is the most joyful little boy who lights up every room he is in.  His Mama said that she hopes his story inspires other NICU parents. “The days are long but there is light at the end of the tunnel and you are never alone. I pray for all the families and babies that are in the NICU and hope they all get better and get to come home soon.” - Madison Canelo #nicuparents #nicubaby #nicugrad #shortgut #hypospadias #nicustrong #preemiestrong #preemiepower #preemieparents #preemiepride #30weeker #prematurityawarenessmonth #preemiebaby
Instagram post 18041897378323338 Instagram post 18041897378323338
As a NICU parent and advocate for families, I’m As a NICU parent and advocate for families, I’m continually inspired by the powerful stories shared by NICU families 💜 This #PrematurityAwarenessMonth, I invite you to share your NICU story to spread hope to others. 💫 If AngelEye’s solutions—like their Camera System, staff messaging, education support, or MilkTracker—have been part of your NICU journey, please leave a comment. Your words can make a meaningful difference. ✨ Three selected stories will receive a $100 grant for the NICU of your choice to support family-centered care To participate, follow @AngelEye_Health and share your story in the comments by November 30. Winners will be announced on December 5. I’m grateful to be part of this journey with you. Together, let’s build a stronger, supportive community. 💙 #AngelEyeHealth #ShareYourStory #PrematurityAwareness #PreemieParents #NICUParents #nicubaby #nicuparents #nicugraduate #niculife #nicucams #nicunurse #preemiestrong #preemiepower #preemieparents #preemiemom
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Published in neonatal INTENSIVE CARE: The Journal of Perinatology and Neonatology Winter 2023

NICU, neonatal intensive care, nicu parent, nicu nurse, connectedness, parent-child attachment

Published in neonatal INTENSIVE CARE: The Journal of Perinatology and Neonatology Summer 2023

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On the Other Side: A Neonatal Nurse Practitioner’s Perspective on being the mother of a 23-weeker

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empoweringnicuparents
💜 Did you know that infants born premature may 💜 Did you know that infants born premature may face health challenges that extend beyond the NICU? This episode of the Empowering NICU Parents Podcast is one of the most emotionally impactful I’ve ever created—but it’s also one of the most important. We explore the lasting effects of prematurity on babies, parents, and families, focusing on the importance of awareness, advocacy, and proactive care. From health challenges to emotional resilience, this is a must-listen for anyone touched by the NICU journey. While this episode is filled with valuable insights, I want to acknowledge that it may also be difficult for NICU parents to listen to. Please know it is shared with the utmost care and compassion to empower and support you. 🎧 Why listen?
✔️ Understand the long-term impacts of prematurity
✔️ Learn how to advocate for your child’s care
✔️ Raise awareness for NICU families Together, we can raise awareness, inspire others, and support families navigating life beyond the NICU. ✨ Tag a NICU parent, healthcare provider, or supporter. Let’s empower each other and make a difference. 💪💜 #PrematurityAwareness #NICUJourney #EmpoweringNICUParents #PreemieStrong #LifeBeyondTheNICU #NICUParentSupport #PrematureBaby #NICUWarrior #PreemieLove #preemiemom #nicunurse #nnp #micropreemie #micropreemiemom #nicuparents #nicugraduate #nicuawareness
Prematurity Awareness Month is a time to honor the Prematurity Awareness Month is a time to honor the resilience of premature infants, celebrate the strength of their families, and raise awareness of the lasting impacts of preterm birth. For NICU families, take it one day at a time, show yourself grace, and know you’re not alone—during or after the NICU. Advocate for your little one every step of the way. To NICU clinicians, the care you give and how you give it truly matters—never underestimate your impact. Together, we can make a difference. #prematurityawarenessmonth #prematurityawareness #preemiestrong #preemiebaby #preemiemom #preemieparents #nicuparents #nicunurse
Prematurity Awareness Month The NICU journey with Prematurity Awareness Month The NICU journey with a premature infant is long, scary, unforgettable, and some days, it feels never ending. Not only does the trauma from the NICU last for years, but for some children, the lingering complications from a preterm birth remain at the forefront throughout their lifetime. Although the co-morbidities may not be apparent to the naked eye, their affect on the child and family are very impactful. This month is a time to honor all premature infants, celebrate the strength of their families, and to also bring awareness to others that the physical and mental impacts of a premature delivery remain with the infant and family for years and years. For NICU families, remember to take it one day at a time, and know that you are not alone in the process - whether it’s while you’re in the NICU, or post discharge. Show yourself some grace and always advocate for your little one. For NICU clinicians, know that the care you provide and the manner in which you provide it truly matters - do not ever underestimate it or your value. Together, we can make a powerful impact. #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemie #micropreemiemom #micropreemiesrock #prematuritymatters #preemiebaby #preemieawareness #preemielife
Good morning! Grateful for a beautiful day! Good morning! Grateful for a beautiful day!
Today, on World Prematurity Day, we recognize the Today, on World Prematurity Day, we recognize the resilience of preterm infants and their families and bring awareness to the challenges they face—not just in the NICU but for years to come. Each year, 1 in 10 babies worldwide are born too soon. Let’s stand together in support and hope for every baby born too soon. 💜 #WorldPrematurityDay #SupportPreemies #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemiemama #micropreemie #micropreemiemom #preemieparents #preemiebaby
Meet Thursday’s 30 weeker! Forrest was born on Meet Thursday’s 30 weeker! Forrest was born on May 8th, 2023 at 30 weeks’ gestation. He weighed 2lbs. 2oz He had quite the battle and fought like a true hero. He was born with an imperforate anus and hypospadias. On his second day of life, he underwent a crucial surgery to address the imperforate anus, which led to a colostomy of the larger intestine. Despite the early hardships, Forrest showed remarkable resilience and progress, bringing hope to everyone around him. He became very ill when he was a month and a half old. He underwent an emergent exploratory laparotomy on July 20th. Unfortunately, they discovered a malrotation of his small intestines. In a courageous display of strength, Forrest survived the intricate surgery, but not without a toll. The medical team had to remove 44cm of his small intestine, leaving him with a temporary jejunostomy.  Unfortunately, during his reanastomosis, they found 15cm of his small intestine that was necrotic. The surgeons removed it which only left him with 30cm of small intestines total. Forrest had a G-tube and broviac central line placed to get nutrients from TPN and lipids. He has “short gut syndrome” and works everyday to build up his tolerance of food.   So far he has had six major surgeries and he faces another four daunting operations to create an anus and revise the hypospadias. Forrest has had a long and arduous journey. His Mama @mcanelo1028 said that they are so thankful to have him as their some and to have him home. They are in utter awe of his strength and determination to live. He is the most joyful little boy who lights up every room he is in.  His Mama said that she hopes his story inspires other NICU parents. “The days are long but there is light at the end of the tunnel and you are never alone. I pray for all the families and babies that are in the NICU and hope they all get better and get to come home soon.” - Madison Canelo #nicuparents #nicubaby #nicugrad #shortgut #hypospadias #nicustrong #preemiestrong #preemiepower #preemieparents #preemiepride #30weeker #prematurityawarenessmonth #preemiebaby
Instagram post 18041897378323338 Instagram post 18041897378323338
As a NICU parent and advocate for families, I’m As a NICU parent and advocate for families, I’m continually inspired by the powerful stories shared by NICU families 💜 This #PrematurityAwarenessMonth, I invite you to share your NICU story to spread hope to others. 💫 If AngelEye’s solutions—like their Camera System, staff messaging, education support, or MilkTracker—have been part of your NICU journey, please leave a comment. Your words can make a meaningful difference. ✨ Three selected stories will receive a $100 grant for the NICU of your choice to support family-centered care To participate, follow @AngelEye_Health and share your story in the comments by November 30. Winners will be announced on December 5. I’m grateful to be part of this journey with you. Together, let’s build a stronger, supportive community. 💙 #AngelEyeHealth #ShareYourStory #PrematurityAwareness #PreemieParents #NICUParents #nicubaby #nicuparents #nicugraduate #niculife #nicucams #nicunurse #preemiestrong #preemiepower #preemieparents #preemiemom
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