To honor HIE Awareness Month this April, I sat down with the Executive Director for Hope for HIE, Betsy Pilon.
Betsy shares her personal experience after her son, Max was diagnosed with HIE or Hypoxic Ischemic Encephalopathy, a type of neonatal brain injury. Listen to hear how repetitive gaps in resources and lack of support for HIE families drove her to make a change. She now spearheads the non-profit organization to help other HIE families navigate their journey. By promoting awareness, education, and support, she ensures that no one feels alone after a diagnosis of HIE.
Despite permanent impacts from Max’s HIE, he is living his best life, thriving in school, and optimizing the opportunities given to him. They have learned through their personal journey and the support of the HIE community that families and individuals can thrive in their own ways.
Empowering NICU Parents Show Notes:https://empoweringnicuparents.com/episode9/
Empowering NICU Parents Instagram: https://www.instagram.com/empoweringnicuparents/
Empowering NICU Parents FB Group:https://www.facebook.com/groups/empoweringnicuparents
