For this podcast, I continued my conversation with Jessica Wolff. We discussed what their life was like once they brought Lily home. She explains how they adjusted to caring for Lily with her tracheostomy along with the necessary life-saving equipment and how all of that completely changed once COVID hit.
We discussed how the plan for Lily’s decannulation went completely sideways, how they coped with it, and how they learned that Lily actually needed a full laryngotracheal reconstructive surgery. Jessica proudly shares how Lily is doing today, medically, developmentally and emotionally and how they are navigating everything as a family, especially in preparation for sweet Lily to head to Preschool!
We conclude the episode speaking about Nolan, Jessica and Pat’s son who they welcomed earlier this year who also spent some time in the NICU.
Jessica shares some great information and advice pertinent to other families who are either currently in the NICU and weighing the heavy decision of a tracheostomy for their child, or for the families who have a child at home with a tracheostomy, as well as families who have suffered or may suffer a loss. Listeners will be surprised to hear some of the unexpected emotions that Lily and the Wolff family has had to work through once Lily had her trach removed. And again, you will be amazed by how strong and resilient Lily and the entire Wolff family is! I hope you enjoy the episode!
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