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Tag: medically complex child

Home / medically complex child
Podcast

Life After NICU With a Medically Complex Child: What is the Reality? Part II

by empoweringnicuparents

Introduction If you are getting ready to bring your baby …

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🎃 Happy Halloween to all the amazing NICU famil 🎃 Happy Halloween to all the amazing NICU families! 👻 Wishing you sweet treats, tiny miracles, and endless strength as your little pumpkin continues to amaze you each day. 🧡 Remember, you’re never alone on this journey! #NICUstrong #HalloweenInTheNICU #halloween #throwbackthursday #throwbackhalloween #nicumom #nicumama #nicuparents #nicuhalloween #happyhalloween #ilovemymummy
💜 Honored to be featured on Care OutLoud Podcas 💜 Honored to be featured on Care OutLoud Podcast with the incredible Mary Coughlin! 💜 Over the years, Mary has become not just a respected colleague but a friend whose dedication to trauma-informed care inspires me daily. We dove deep into topics that are so close to my heart—trauma-informed care, family-centered support, and the impact the NICU journey has on families. I shared how I felt led to create Empowering NICU Parents, resources like Our NICU Roadmap, and the Empowering NICU Parents’ Podcast all to help families feel more informed, connected, and empowered through their NICU experience. Advocating for compassionate, connected care that walks alongside NICU families every step of the way, ensuring they feel supported, informed, and empowered, remains at the heart of my mission. I am able to fuel my passion through my advocacy work on the Family-Centered Care Taskforce and at AngelEye Health, with NICU2Home which provides essential support, education, and a smoother transition to discharge. Huge thank you to Mary for giving me this platform to share my story and for all the incredible work she does at Caring Essentials Collaborative to reshape NICU care. 💫 #nicuparents #nicubaby #nicujourney #nicunurse #niculife #preemieparents #nicutrauma #traumainformed #familycenteredcare #careoutloud #nicupodcast
October is Pregnancy and Infant Loss Awareness Mon October is Pregnancy and Infant Loss Awareness Month. It is a time we pause to honor the lives gone too soon and the families who carry their memory with endless love. 💕 The heartache of parents endure who cannot physically hold their baby is everlasting and beyond explanation. A piece of your heart is in heaven which makes it continually ache because it is not whole. We remember the babies born sleeping, those we carried but never held, and those who could not stay. Your love and light remain with us every day. You are never forgotten. #PregnancyAndInfantLossAwareness #ForeverInOurHearts #AlwaysRemembered #pregnancyandinfantlossawarenessmonth #pregnancyloss #infantloss #miscarriageawareness #miscarriagesupport #miscarriagesucks #iamoneinfour #oneinfour #lifewithoutyou #babyloss #gonebutneverforgotten #angelsinheaven #ingodsarms
A day we pause and remember all of the little ones A day we pause and remember all of the little ones lost too soon, but that will never be forgotten. Many people suffer in silence and I want them to know that they are not alone. When we lost Weston followed by Quin in the same year, it broke me. A little piece of me left with each of them. The grief we endure after the loss of a child does not go away, but it changes - just as we all changed the moment we lost our little ones. If you know of someone who has lost a baby or child, please reach out to them and let them know that you are thinking of them, and not just today, but every day! I am thinking of you today and every day! Say your baby’s name(s) out loud by typing their name(s) in the comments. We acknowledge your loss and your baby’s life, no matter how short it was. #pregnancyandinfantlossawareness #pregnancyandinfantlossawarenessmonth #pregnancyandunfantlossremembranceday #pregnancyloss #infantloss #infantlossawareness #waveoflight #honoringourbabies #gonetoosoon #lossmama #pregnancylossjourney #miscarriage #miscarriageawareness #iamoneinfour #miscarriagesurvivor
Meet Sunday’s Superstar, Kyler! He was born at 2 Meet Sunday’s Superstar, Kyler! He was born at 27 weeks’ gestation and had a 105 day NICU stay. He spent time on the oscillator and ventilator, followed by CPAP, nasal cannula, and eventually room air. Due to his significant reflux, his Mama @kelskillilea36 had to eventually make the difficult decision to donate 3 months worth of breastmilk when they determined he could not tolerate it. He also had ROP surgery. Today, his Mama @kelskillilea36 said he is a strong 5-year-old who loves life! They are incredibly happy with him and his growth. He’s also a wonderful big brother to a little brother and brand-new baby sister! #nicubaby #nicugrad #nicumama #nicuparents #nicumom #niculife #preemiestrong #preemiebaby #preemiepower #27weeker #nicustrong #preemieparents #preemielife #nicugraduate #sundayssuperstar
This week, we celebrate the incredible neonatal nu This week, we celebrate the incredible neonatal nurses who dedicate their lives to caring for the tiniest and most vulnerable among us. They are the steady hands and compassionate hearts who bring hope, healing, and strength to families facing unimaginable challenges. Beyond their clinical skills, they provide comfort, courage, and connection, guiding families through the NICU journey with unwavering support and love. Thank you, neonatal nurses, for being the light in the NICU and touching countless lives in ways that words can never fully capture. #NeonatalNursesWeek #NICUNurses #HeroesInScrubs #nicunurse #nicuawarenessmonth #nicuawareness #neonatalnurse #nicubaby #niculife #nicustrong #nnp #neonatalnursepractitioner #neonatology #nicuheroes #nicugraduate #nicuwarrior
Happy Neonatal Nurses Day! Thank you to all of t Happy Neonatal Nurses Day! Thank you to all of the neonatal nurses! We so appreciate your heart and dedication! NICU nurses are the quiet heroes who hold the tiniest hands and the heaviest hearts. They not only care for fragile lives, but they also support families with strength and compassion, guiding them through uncertainty and fear with empathy and reassurance. They are the ones who celebrate each small victory as if it were their own, providing not just medical care, but endless love and hope to families during their most vulnerable moments. Their presence brings comfort when words can’t, and their hands offer healing when it’s needed most. They become the lifeline families lean on, offering comfort, knowledge, and hope in the darkest of times. They don’t just save lives—they nurture dreams of brighter tomorrows, one precious baby at a time. Thank you to all of William’s NICU nurses! We will never forget everything you did for him and our family! We will be forever grateful! Tag your favorite NICU nurses! #neonatalnurses #nicuawarenessmonth #nicuawareness #neonatalnursesday #nicunurse #nicubaby #nicu #nicuparents #nicumom #niculife #neonatology #nicuheroes #nicugraduate #nicugrad #empoweringnicuparents
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