NICU journey – Empowering NICU Parents

Cooper Steinhauser Foundation

Cooper’s Legacy: Supporting NICU Families Through the Cooper Steinhauser Foundation

by empoweringnicuparents

In this episode, Edward Steinhauser shares the emotional story of his son Cooper’s NICU journey and how it inspired him and his wife, Haley, to create the Cooper Steinhauser Foundation. Their mission provides essential support to NICU families, offering resources, advocacy, and hope during challenging times.

NNP, MD, NICU

NICU Knowledge Podcast

Embracing Parental Advocacy and Empowerment in the NICU

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Introduction For our 52nd podcast episode, I was joined by …

Keeping an Eye on Your Angel in the NICU

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Introduction As a NICU parent, one of the most difficult …

The Wolff Family’s Post NICU Journey Through Home Trach Care, Decannulation, and Unexpected Surprises Too

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Introduction For our most recent podcast episode, I sat down …

Trauma-Informed Care in the NICU with Mary Coughlin

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Introduction For this podcast episode, I was very honored to …

NICU Products Podcast

Questions Parents Should Ask Their Baby’s NICU Care Team Each Day

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Introduction I am so thrilled to announce that Our NICU …

NICU Knowledge Podcast

Advice for Current NICU Parents From Mothers of Multiples

by empoweringnicuparents

Introduction If you are a NICU parent and are in …

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empoweringnicuparents

Prematurity Awareness Month is a time to honor the

Prematurity Awareness Month is a time to honor the resilience of premature infants, celebrate the strength of their families, and raise awareness of the lasting impacts of preterm birth.

For NICU families, take it one day at a time, show yourself grace, and know you’re not alone—during or after the NICU. Advocate for your little one every step of the way.

To NICU clinicians, the care you give and how you give it truly matters—never underestimate your impact. Together, we can make a difference. #prematurityawarenessmonth #prematurityawareness #preemiestrong #preemiebaby #preemiemom #preemieparents #nicuparents #nicunurse

Prematurity Awareness Month The NICU journey with

Prematurity Awareness Month

The NICU journey with a premature infant is long, scary, unforgettable, and some days, it feels never ending.

Not only does the trauma from the NICU last for years, but for some children, the lingering complications from a preterm birth remain at the forefront throughout their lifetime.

Although the co-morbidities may not be apparent to the naked eye, their affect on the child and family are very impactful.

This month is a time to honor all premature infants, celebrate the strength of their families, and to also bring awareness to others that the physical and mental impacts of a premature delivery remain with the infant and family for years and years.

For NICU families, remember to take it one day at a time, and know that you are not alone in the process - whether it’s while you’re in the NICU, or post discharge.

Show yourself some grace and always advocate for your little one.

For NICU clinicians, know that the care you provide and the manner in which you provide it truly matters - do not ever underestimate it or your value.

Together, we can make a powerful impact.

#prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemie #micropreemiemom #micropreemiesrock #prematuritymatters #preemiebaby #preemieawareness #preemielife

Good morning! Grateful for a beautiful day!

Good morning! Grateful for a beautiful day!

Today, on World Prematurity Day, we recognize the

Today, on World Prematurity Day, we recognize the resilience of preterm infants and their families and bring awareness to the challenges they face—not just in the NICU but for years to come.

Each year, 1 in 10 babies worldwide are born too soon.

Let’s stand together in support and hope for every baby born too soon. 💜

#WorldPrematurityDay #SupportPreemies #prematurityawarenessmonth #prematurityawareness #preemiemom #preemiepower #preemiesrock #preemiestrong #micropreemiemama #micropreemie #micropreemiemom #preemieparents #preemiebaby

Meet Thursday’s 30 weeker! Forrest was born on

Meet Thursday’s 30 weeker!

Forrest was born on May 8th, 2023 at 30 weeks’ gestation. He weighed 2lbs. 2oz

He had quite the battle and fought like a true hero. He was born with an imperforate anus and hypospadias. On his second day of life, he underwent a crucial surgery to address the imperforate anus, which led to a colostomy of the larger intestine.

Despite the early hardships, Forrest showed remarkable resilience and progress, bringing hope to everyone around him. He became very ill when he was a month and a half old. He underwent an emergent exploratory laparotomy on July 20th. Unfortunately, they discovered a malrotation of his small intestines. In a courageous display of strength, Forrest survived the intricate surgery, but not without a toll. The medical team had to remove 44cm of his small intestine, leaving him with a temporary jejunostomy.

Unfortunately, during his reanastomosis, they found 15cm of his small intestine that was necrotic. The surgeons removed it which only left him with 30cm of small intestines total. Forrest had a G-tube and broviac central line placed to get nutrients from TPN and lipids. He has “short gut syndrome” and works everyday to build up his tolerance of food.

So far he has had six major surgeries and he faces another four daunting operations to create an anus and revise the hypospadias. Forrest has had a long and arduous journey. His Mama @mcanelo1028 said that they are so thankful to have him as their some and to have him home. They are in utter awe of his strength and determination to live.

He is the most joyful little boy who lights up every room he is in.

His Mama said that she hopes his story inspires other NICU parents. “The days are long but there is light at the end of the tunnel and you are never alone. I pray for all the families and babies that are in the NICU and hope they all get better and get to come home soon.” - Madison Canelo

#nicuparents #nicubaby #nicugrad #shortgut #hypospadias #nicustrong #preemiestrong #preemiepower #preemieparents #preemiepride #30weeker #prematurityawarenessmonth #preemiebaby

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Instagram post 18041897378323338

As a NICU parent and advocate for families, I’m

As a NICU parent and advocate for families, I’m continually inspired by the powerful stories shared by NICU families 💜

This #PrematurityAwarenessMonth, I invite you to share your NICU story to spread hope to others. 💫

If AngelEye’s solutions—like their Camera System, staff messaging, education support, or MilkTracker—have been part of your NICU journey, please leave a comment. Your words can make a meaningful difference.

✨ Three selected stories will receive a $100 grant for the NICU of your choice to support family-centered care

To participate, follow @AngelEye_Health and share your story in the comments by November 30. Winners will be announced on December 5.

I’m grateful to be part of this journey with you. Together, let’s build a stronger, supportive community. 💙

#AngelEyeHealth #ShareYourStory #PrematurityAwareness #PreemieParents #NICUParents #nicubaby #nicuparents #nicugraduate #niculife #nicucams #nicunurse #preemiestrong #preemiepower #preemieparents #preemiemom

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